Stock chart
Ticker: RARE Exchange: NSM


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Purchase Sale Planned purchase Planned sale Net purchase Net sale Earnings
Earnings
 
Value bought

Past 90 days

 
Value sold

Past 90 days

 
Net insiders buying

Past 90 days

 
Trades (buy and sell)

Past 90 days

Abbreviations B: Buy, S: Sell, PP: Planned purchase, PS: Planned sale, O: Option / Other
Notification date Transaction date B/S Transaction type Insider and/or position Nb. shares
Price
Value
Number of shares Price Value Details
2025-03-10 2025-03-06 S Sale

Horn Howard

Chief Financial Officer

Officer
1,785 -1.7%
40.40
USD 72,114
1,785 -1.7% 40.40 USD 72,114
2025-03-04 2025-03-03 S Sale

Kassberg Thomas Richard

CBO & EVP

Officer
6,028 -2.2%
42.10
USD 253,779
6,028 -2.2% 42.10 USD 253,779
2025-03-04 2025-03-03 PS Planned sale

Crombez Eric

EVP and Chief Medical Officer

Officer
8,945 -11.1%
42.10
USD 376,585
8,945 -11.1% 42.10 USD 376,585
2025-03-04 2025-03-03 S Sale

KAKKIS EMIL D

President & CEO

Executive Director
73,434 -10.3%
42.10
USD 3,091,571
73,434 -10.3% 42.10 USD 3,091,571
2025-03-04 2025-03-03 S Sale

Pinion John Richard

See Remarks

Officer
14,439 -11.8%
42.10
USD 607,882
14,439 -11.8% 42.10 USD 607,882
2025-03-04 2025-03-03 S Sale

Parschauer Karah Herdman

EVP and Chief Legal Officer

Officer
12,846 -14.6%
42.10
USD 540,817
12,846 -14.6% 42.10 USD 540,817
2025-03-04 2025-03-03 PS Planned sale

Harris Erik

EVP & Chief Commercial Officer

Officer
15,103 -14.7%
42.10
USD 635,836
15,103 -14.7% 42.10 USD 635,836
2025-03-04 2025-03-03 S Sale

Huizenga Theodore Alan

SVP, Chief Accounting Officer

Officer
967 -1.9%
42.10
USD 40,711
967 -1.9% 42.10 USD 40,711
2025-03-04 2025-02-28 S Sale

KAKKIS EMIL D

President & CEO

Executive Director
25,000 -1.1%
42.48
USD 1,062,000
25,000 -1.1% 42.48 USD 1,062,000
2025-03-03 2025-02-27 S Sale

Parschauer Karah Herdman

EVP and Chief Legal Officer

Officer
760 -1.4%
42.75
USD 32,490
760 -1.4% 42.75 USD 32,490
2025-03-03 2025-02-27 S Sale

Parschauer Karah Herdman

EVP and Chief Legal Officer

Officer
2,230 -3.8%
42.93
USD 95,734
2,230 -3.8% 42.93 USD 95,734
2024-12-31 2024-12-30 S Sale

KAKKIS EMIL D

President & CEO

Executive Director
11,727 -0.5%
42.23
USD 495,231
11,727 -0.5% 42.23 USD 495,231
2024-12-11 2024-12-10 S Sale

KAKKIS EMIL D

President & CEO

Executive Director
8,273 -0.4%
50.00
USD 413,650
8,273 -0.4% 50.00 USD 413,650
2024-10-11 2024-10-10 S Sale

Horn Howard

Chief Financial Officer

Officer
7,465 -7.5%
52.76
USD 393,853
7,465 -7.5% 52.76 USD 393,853
2024-09-05 2024-09-03 PS Planned sale

Huizenga Theodore Alan

SVP, Chief Accounting Officer

Officer
91 -0.2%
56.19
USD 5,113
91 -0.2% 56.19 USD 5,113
2024-09-05 2024-09-03 S Sale

KAKKIS EMIL D

President & CEO

Executive Director
20,000 -0.9%
55.85
USD 1,117,000
20,000 -0.9% 55.85 USD 1,117,000
2024-08-07 2024-08-06 S Sale

KAKKIS EMIL D

President & CEO

Executive Director
20,000 -0.9%
50.17
USD 1,003,400
20,000 -0.9% 50.17 USD 1,003,400
2024-07-03 2024-07-02 S Sale

Sanders Corazon (Corsee) D.

Non-Executive Director
584 -4.6%
40.98
USD 23,932
584 -4.6% 40.98 USD 23,932
2024-06-12 2024-06-12 PS Planned sale

Parschauer Karah Herdman

EVP and Chief Legal Officer

Officer
9,806 -14.5%
45.00
USD 441,270
9,806 -14.5% 45.00 USD 441,270
2024-06-10 2024-06-10 S Sale

Sanders Corazon (Corsee) D.

Non-Executive Director
1,737 -19.3%
41.10
USD 71,391
1,737 -19.3% 41.10 USD 71,391
2024-05-03 2024-05-02 S Sale

Crombez Eric

EVP and Chief Medical Officer

Officer
354 -0.7%
43.66
USD 15,456
354 -0.7% 43.66 USD 15,456
2024-04-19 2024-04-18 S Sale

Crombez Eric

EVP and Chief Medical Officer

Officer
142 -0.3%
44.10
USD 6,262
142 -0.3% 44.10 USD 6,262
2024-03-12 2024-03-11 S Sale

Kassberg Thomas Richard

CBO & EVP

Officer
11,509 -4.4%
49.93
USD 574,644
11,509 -4.4% 49.93 USD 574,644
2024-03-11 2024-03-07 S Sale

Fust Matthew K

Non-Executive Director
7,500 -33.5%
50.88
USD 381,600
7,500 -33.5% 50.88 USD 381,600
2024-03-11 2024-03-07 S Sale

Fust Matthew K

Non-Executive Director
2,145 -8.8%
50.85
USD 109,073
2,145 -8.8% 50.85 USD 109,073
2024-03-11 2024-03-07 S Sale

Fust Matthew K

Non-Executive Director
2,550 -9.4%
50.89
USD 129,770
2,550 -9.4% 50.89 USD 129,770
2024-03-05 2024-03-01 PS Planned sale

Parschauer Karah Herdman

EVP and Chief Legal Officer

Officer
3,756 -5.3%
53.76
USD 201,923
3,756 -5.3% 53.76 USD 201,923
2024-03-05 2024-03-01 S Sale

Pinion John Richard

See Remarks

Officer
4,173 -4.5%
53.76
USD 224,340
4,173 -4.5% 53.76 USD 224,340
2024-03-05 2024-03-01 S Sale

Huizenga Theodore Alan

SVP, Chief Accounting Officer

Officer
341 -0.8%
53.76
USD 18,332
341 -0.8% 53.76 USD 18,332
2024-03-05 2024-03-01 S Sale

Kassberg Thomas Richard

CBO & EVP

Officer
1,011 -0.4%
53.76
USD 54,351
1,011 -0.4% 53.76 USD 54,351
2024-03-05 2024-03-01 PS Planned sale

Harris Erik

EVP & Chief Commercial Officer

Officer
4,768 -6.6%
53.76
USD 256,328
4,768 -6.6% 53.76 USD 256,328
2024-03-05 2024-03-01 PS Planned sale

Crombez Eric

EVP and Chief Medical Officer

Officer
1,238 -2.5%
53.76
USD 66,555
1,238 -2.5% 53.76 USD 66,555
2024-02-08 2024-02-07 PS Planned sale

KAKKIS EMIL D

President & CEO

Executive Director
30,000 -5.3%
45.00
USD 1,350,000
30,000 -5.3% 45.00 USD 1,350,000
2024-01-02 2023-12-29 PS Planned sale

KAKKIS EMIL D

President & CEO

Executive Director
30,000 -5.0%
47.87
USD 1,436,100
30,000 -5.0% 47.87 USD 1,436,100
2023-10-24 2023-10-23 S Sale

Kassberg Thomas Richard

CBO & EVP

Officer
39,878 -13.9%
32.78
USD 1,307,201
39,878 -13.9% 32.78 USD 1,307,201
2023-10-23 2023-10-19 PS Planned sale

KAKKIS EMIL D

President & CEO

Executive Director
47,853 -7.4%
33.52
USD 1,604,033
47,853 -7.4% 33.52 USD 1,604,033
2023-09-11 2023-09-07 S Sale

Huizenga Theodore Alan

SVP, Chief Accounting Officer

Officer
163 -0.7%
38.34
USD 6,249
163 -0.7% 38.34 USD 6,249
2023-09-11 2023-09-07 S Sale

Huizenga Theodore Alan

SVP, Chief Accounting Officer

Officer
2,000 -7.8%
41.00
USD 82,000
2,000 -7.8% 41.00 USD 82,000
2023-09-06 2023-09-05 S Sale

Harris Erik

EVP & Chief Commercial Officer

Officer
6,000 -10.5%
37.96
USD 227,760
6,000 -10.5% 37.96 USD 227,760
2023-09-06 2023-09-01 S Sale

Huizenga Theodore Alan

SVP, Chief Accounting Officer

Officer
87 -0.4%
38.23
USD 3,326
87 -0.4% 38.23 USD 3,326
2023-09-06 2023-09-01 PS Planned sale

Huizenga Theodore Alan

SVP, Chief Accounting Officer

Officer
883 -3.6%
37.04
USD 32,706
883 -3.6% 37.04 USD 32,706
2023-06-21 2023-06-19 PS Planned sale

Harris Erik

EVP & Chief Commercial Officer

Officer
305 -0.5%
48.20
USD 14,701
305 -0.5% 48.20 USD 14,701
2023-06-09 2023-06-08 PS Planned sale

Sanders Corazon (Corsee) D.

Non-Executive Director
1,485 -13.4%
51.65
USD 76,700
1,485 -13.4% 51.65 USD 76,700
2023-05-19 2023-05-18 PS Planned sale

Pinion John Richard

See Remarks

Officer
2,012 -2.6%
50.00
USD 100,600
2,012 -2.6% 50.00 USD 100,600
2023-05-05 2023-05-04 PS Planned sale

Parschauer Karah Herdman

EVP and Chief Legal Officer

Officer
4,378 -7.8%
45.00
USD 197,010
4,378 -7.8% 45.00 USD 197,010
2023-03-03 2023-03-01 S Sale

Bedrosian Camille L

EVP and Chief Medical Officer

Officer
3,881 -7.7%
45.25
USD 175,615
3,881 -7.7% 45.25 USD 175,615
2023-03-03 2023-03-01 S Sale

Pinion John Richard

See Remarks

Officer
3,755 -4.5%
45.26
USD 169,951
3,755 -4.5% 45.26 USD 169,951
2023-03-03 2023-03-01 PS Planned sale

Parschauer Karah Herdman

EVP and Chief Legal Officer

Officer
3,161 -5.3%
45.25
USD 143,035
3,161 -5.3% 45.25 USD 143,035
2023-03-03 2023-03-01 PS Planned sale

Harris Erik

EVP & Chief Commercial Officer

Officer
3,664 -6.0%
45.25
USD 165,796
3,664 -6.0% 45.25 USD 165,796
2023-03-03 2023-03-01 S Sale

Huang Dennis Karl

See Remarks

Officer
389 -0.5%
45.65
USD 17,758
389 -0.5% 45.65 USD 17,758
2023-03-03 2023-03-01 S Sale

Huizenga Theodore Alan

SVP, Chief Accounting Officer

Officer
100 -0.4%
45.65
USD 4,565
100 -0.4% 45.65 USD 4,565
2023-03-03 2023-03-01 S Sale

Kassberg Thomas Richard

CBO & EVP

Officer
1,968 -0.8%
45.27
USD 89,091
1,968 -0.8% 45.27 USD 89,091
2023-03-02 2023-02-28 PS Planned sale

Huizenga Theodore Alan

SVP, Chief Accounting Officer

Officer
639 -3.9%
43.40
USD 27,733
639 -3.9% 43.40 USD 27,733
2023-01-03 2022-12-30 PS Planned sale

KAKKIS EMIL D

President & CEO

Executive Director
19,582 -3.5%
45.57
USD 892,352
19,582 -3.5% 45.57 USD 892,352
2022-12-22 2022-12-21 PS Planned sale

Huizenga Theodore Alan

SVP, Chief Accounting Officer

Officer
2,031 -11.1%
43.96
USD 89,283
2,031 -11.1% 43.96 USD 89,283
2022-10-17 2022-10-14 PS Planned sale

Dier Mardi

CFO & Executive Vice President

Officer
1,629 -2.4%
40.16
USD 65,421
1,629 -2.4% 40.16 USD 65,421
2022-10-14 2022-10-12 S Sale

Dier Mardi

CFO & Executive Vice President

Officer
3,484 -4.9%
38.22
USD 133,158
3,484 -4.9% 38.22 USD 133,158
2022-06-22 2022-06-19 PS Planned sale

Harris Erik

EVP & Chief Commercial Officer

Officer
295 -0.8%
54.78
USD 16,160
295 -0.8% 54.78 USD 16,160
2022-04-19 2022-04-16 S Sale

Huizenga Theodore Alan

SVP, Chief Accounting Officer

Officer
132 -0.8%
84.55
USD 11,161
132 -0.8% 84.55 USD 11,161
2022-03-15 2022-03-11 S Sale

Kassberg Thomas Richard

CBO & EVP

Officer
10,281 -4.3%
67.01
USD 688,930
10,281 -4.3% 67.01 USD 688,930
2022-03-08 2022-03-07 S Sale

Parschauer Karah Herdman

EVP and Chief Legal Officer

Officer
5,140 -13.0%
62.95
USD 323,563
5,140 -13.0% 62.95 USD 323,563
2022-03-03 2022-03-03 PS Planned sale

Dier Mardi

CFO & Executive Vice President

Officer
420 -0.8%
64.55
USD 27,111
420 -0.8% 64.55 USD 27,111
2022-03-03 2022-03-01 S Sale

Huizenga Theodore Alan

SVP, Chief Accounting Officer

Officer
843 -6.0%
66.62
USD 56,161
843 -6.0% 66.62 USD 56,161
2022-03-03 2022-03-01 S Sale

Parschauer Karah Herdman

EVP and Chief Legal Officer

Officer
2,886 -10.2%
66.62
USD 192,265
2,886 -10.2% 66.62 USD 192,265
2022-03-03 2022-03-01 S Sale

Pinion John Richard

See Remarks

Officer
4,498 -9.0%
66.62
USD 299,657
4,498 -9.0% 66.62 USD 299,657
2022-03-03 2022-03-01 S Sale

Dier Mardi

CFO & Executive Vice President

Officer
534 -1.4%
66.62
USD 35,575
534 -1.4% 66.62 USD 35,575
2022-03-03 2022-03-01 S Sale

Harris Erik

EVP & Chief Commercial Officer

Officer
2,713 -10.8%
66.62
USD 180,740
2,713 -10.8% 66.62 USD 180,740
2022-03-03 2022-03-01 S Sale

Huang Dennis Karl

See Remarks

Officer
3,234 -8.1%
66.62
USD 215,449
3,234 -8.1% 66.62 USD 215,449
2022-03-03 2022-03-01 S Sale

Kassberg Thomas Richard

CBO & EVP

Officer
2,374 -1.1%
66.62
USD 158,156
2,374 -1.1% 66.62 USD 158,156
2022-03-03 2022-03-01 S Sale

Bedrosian Camille L

EVP and Chief Medical Officer

Officer
2,821 -7.7%
66.62
USD 187,935
2,821 -7.7% 66.62 USD 187,935
2022-02-01 2022-01-30 S Sale

Bedrosian Camille L

EVP and Chief Medical Officer

Officer
1,657 -4.3%
66.30
USD 109,859
1,657 -4.3% 66.30 USD 109,859
2021-10-18 2021-10-14 S Sale

Harris Erik

EVP & Chief Commercial Officer

Officer
303 -1.2%
81.14
USD 24,585
303 -1.2% 81.14 USD 24,585
2021-10-18 2021-10-14 S Sale

Huang Dennis Karl

EVP & Chief Tech Ops Officer

Officer
358 -0.9%
81.14
USD 29,048
358 -0.9% 81.14 USD 29,048
2021-10-18 2021-10-14 S Sale

Parschauer Karah Herdman

EVP and General Counsel

Officer
310 -1.1%
81.14
USD 25,153
310 -1.1% 81.14 USD 25,153
2021-10-18 2021-10-14 S Sale

Pinion John Richard

See Remarks

Officer
358 -0.7%
81.14
USD 29,048
358 -0.7% 81.14 USD 29,048
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